Sensory Processing

Praise God!!

From Melinda’s Facebook page

“I met you and Josh at the IAHE Convention in Indianapolis the end of May. I just wanted to THANK YOU for the break out sessions that you offered and for your book. My son has now officially been diagnosed with ADHD with Sensory Processing Disorder as I am reading your book I see so much of my son. Just change out the names and it’s like it’s his story. We are 10 days into homeschooling and we do have a lot to work through but I am praising God that out of 10 days, only 2 have been bad…the rest have all been good.”

A Mom Like You

In the last six weeks, I’ve had the opportunity to speak at three different state homeschool conventions. At each conference I attend, I share information about learning disabilities, Attention Deficit Hyperactivity Disorder, Sensory Processing Disorders, and Auditory Processing Disorders. More important than the facts I pass along are the real-life stories from my own family experiences. I share what didn’t work as well as what worked at least some of the time. I share some of the failures and frustrations as well as our hard-won achievements.

When my first two children graduated from our homeschool in 2006, we declared our school colors to be black and blue. We were the homeschool of hard knocks! Not only did my children struggle with learning, but I struggled to try to find better ways to teach them. One of the biggest benefits for those attending workshops for children with various special needs is to look around and realize they are not alone. There are others striving to teach children with challenges, and others who understand the difficulties families face when their child has to work harder than most for every small gain they accomplish.

What has always amazed me is how God has prompted me to share some of the hardest, most unimpressive movements of my life and that is what people are blessed by in my workshops. Sure, I offer lots of tips and practical strategies, but what people connect with is hearing a speaker who admits to not having it all together but never gave up trying. My son is a young adult now, and he comes to conferences with me. People look at the two of us as survivors, who dealt with a lot of learning challenges and came out intact. Now Josh can share his perspective, and give parents insight into why their children may act the way they do.

I’ve never had all the answers to the challenges my children faced. What I did have was a commitment to help them grow into the unique individuals God intended them to become, equipping them as best I could. Sometimes I was out of ideas for how to teach a given topic, and my kids still weren’t “getting it”. All I had to offer was reassurance that I would keep trying to find ways to help, and would not give up on them. I would be the knot at the end of the rope that they could hang onto. The message was: Mom doesn’t have all the answers but Mom will always be there with you, coming alongside until we figure something out.

Don’t underestimate the power of just being there for your children. You don’t need to know all the answers, but your kids need to know you haven’t given up on them. It’s in the safety of knowing your love is unwavering that your children find the courage to try again, fail or succeed, and try some more. Our children are far more than what they can or cannot do, and they each have something to offer. This overall supportive attitude has a far greater impact than the best teaching strategies in the world.

Years ago I had a man in his 30’s come up to talk to me after I presented my workshop, “Helping the Distractible Child”. I don’t remember which conference it was, but I will forever remember what he said to me. He explained that as a child he always had difficulty paying attention, and was constantly getting in trouble as a result. He thought he was smart enough, but couldn’t sit still and had trouble completing assignments. He tried hard to comply with the demands put on him, but always felt like he was a disappointment to his parents no matter how hard he worked. “I wish I’d had a mom like you,” he said. “One who could see the strengths and work with me.”

One day all of our children will be adults. I challenge you to be that Mom, the one who never gives up on her kids no matter what. Be that Dad, who is consistently there for his children regardless of their struggles. Be that husband or wife who sticks around during the hard times. Be that person, so that one day your adult children will be able to say, “I’m so glad I had a Mom (and Dad) like you.”

Cooking and Sensory Processing

My son Josh is not a picky eater. He’s always been good about trying new foods. If Josh resists eating something the problem he has is not usually with the taste or texture of something, but the smell.

As a young adult Josh now manages most of his sensory problems with ease. He has discovered that he enjoys cooking and decided he needed to expand the number of recipes he knows how to make. I’ve taught him the basics of meal preparation, and I compiled a list of easy-to-prepare recipes that I thought Josh would enjoy making and eating. One such recipe was “Easy Lemon Chicken”. Josh would gladly consume the final, baked version of this dish. Unfortunately, and I didn’t know this about Josh, he can’t stand the smell of lemon juice.

He’s fine with lemonade, lemon-scented soaps, cleaning wipes, and lemon jello. In fact, I can’t think of anything lemony that Josh reacted negatively to as a child. This experience revealed that there is something different and acrid for him about lemon juice and it was so hard for him to smell that concentrated lemon scent that he had difficulty just measuring it out to make the recipe.

Adding to the challenge was Josh’s tendency to be impulsive, which of course is consistent with his ADHD diagnosis. With all the ingredients, even very common and frequently used ones, Josh automatically gives them a sniff before adding them to a recipe. He tells me he needs to check to make sure the smell is consistent over time and that things should smell exactly the same way each time or something seems wrong and he feels suspicious about that ingredient. In any case, sniffing food items is a well-developed habit by now, though thankfully not in public anymore.

Josh gave the lemon juice a whiff, and had an immediate nose-wrinkling response followed by thrusting his arm as far from his nose as he could extend it. Blinking incredulously, Josh proceeded to…take another whiff from the bottle of lemon juice. Why? Partly due to impulsivity and partly due to his sensory system demanding consistency over time. He had to check again just to make sure it smelled as noxious to him as it had the first time. Yep! It still smelled awful to him, but at least he knew what to expect the second time.

Predictability is comforting to the sensory-challenged. It helps to know what to expect, even if it is still an unpleasant sensation. Better the bad sensory experience you know than the unexpected sensory experience which could prove very unsettling merely by the unpredictability factor. Josh powered through the olfactory assault as he prepared the recipe, although it wasn’t as “easy” for him as the recipe name implied.

Picky Eaters

If you have a picky eater, you’ve probably heard comments such as “Don’t worry, she’ll eat when she’s hungry” or “All young children are picky eaters.”  While these statements may be true of most typically-developing children, some kids take picky eating to the extreme and mealtimes are miserable for all involved.  There are some children who can refuse foods indefinitely, long past the point when most would respond to hunger signals.  Others eat such a limited number of food items that their diet is extremely restricted to just a few accepted foods. Some children insist on using the same plate and cup each time they eat.  Many children with feeding aversions often resist even a change in the brand of foods they will eat.  Is picky eating just a normal part of childhood?  For some, it is far more than a developmental stage and can become a serious concern for the family.

A friend of mine went into a panic when she learned that the only brand of frozen waffles that her son would eat was being discontinued by the manufacturer.  In desperation, she went to several stores to stock up on that particular brand of waffles while feeling anxious about what her son would eat when one of his regular, accepted foods was no longer available.  This little guy had multiple allergies and would only eat a few different foods.  His parents were obviously very worried about his nutrition, and the more they pushed their son to eat, the stronger the resistance they encountered.  Mealtimes, which his parents had hoped would be an enjoyable time of togetherness, instead became a battleground fraught with stressful interactions.

Feeding aversions and extreme picky eating can have a number of underlying physical causes.  A child who has been on a feeding tube may not have developed the muscle coordination needed for eating.  They may have to be taught how to bite and chew foods.  Without adequate feeding skills, children may resist foods that seem too challenging to them.  Some children stuff their mouths with food or just mash food using the tongue instead of moving the food to the molars to chew.  These children may experience gagging and choking, which can lead to avoidance of foods in the future.  Swallowing large pieces of food can also lead to physical discomfort after meals.

Prematurity, allergies, aspiration, reflux, and other physical issues can all contribute to extreme food selectivity in children.  Many children, such as those with autism spectrum disorders (ASD) or attention deficit hyperactivity disorder (ADHD), have difficulties processing and regulating input, including the taste and textures of a variety of foods. Sensory processing dysfunction (SPD) can cause a child to become squeamish just at the sight or smell of certain foods.  Some children will only tolerate foods with specific textures. Children with feeding aversions may eat chicken nuggets from a certain fast food restaurant but refuse chicken nuggets prepared at home.  It is puzzling and frustrating when children refuse to eat or have strong reactions just at the mere sight of a food that they don’t typically consume.

One mother told me that her son’s feeding aversions made it difficult to go out to a restaurant or another family’s home for a meal.  His limited repertoire of accepted foods left his devoted mother trying to explain to others about her son’s strong reactions to smells and textures of foods.  She worried about his nutrition and was baffled by his refusal to try new foods.  She tried strategies that worked with other children, but her son seemed impervious to them all.

When is it time to seek help for a picky eater?  One indication is when a child consistently refuses food or only eats a limited number of foods. For example, a child who eats no fruits or vegetables is missing entire food groups and may have difficulty getting adequate nutrition.  Some children do not drink enough fluids and are poorly hydrated.  A child with repeated respiratory infections may be at risk for aspiration, with food or liquid entering the lungs.  Over time, a child with feeding challenges may develop behavior problems related to eating such as crying and gagging when offered a meal or snack.  When eating problems are interfering with a child’s health and family activities, it can be helpful to consult with a feeding specialist or feeding team.

A feeding team consists of a group of professionals with expertise in the various aspects of feeding and nutrition.  It may include some or all of the following:   primary care physician, dietitian, gastroenterologist, psychologist, speech/language pathologist, and occupational therapist.  At a feeding clinic, the initial evaluation will gather information through parent interview and observation of the child when presented with a variety of foods and drinks.  These professionals work with the child and family to determine ways to meet nutritional needs and expand the child’s diet to include a greater variety of foods.

Feeding aversions and extreme picky eating are far more complicated than mere childhood whimsy.  Feeding problems can interfere with a child’s health and affects the entire family.  When every meal becomes an ordeal, there’s a problem.  Treatment usually progresses slowly, but over time feeding aversions can be lessened, diet expanded, and health improved.

Energetic, Impulsive, and Distractible

My daughter, Beckie, is an amazing girl. She has worked through most of her sensory processing and auditory processing difficulties. She is funny, kind, and is doing well at her part-time job teaching martial arts. Beckie also has a diagnosis of ADHD, combined type. Girls are less likely than boys to be considered hyperactive, but my Beckie has that component with a capital H. I love her energy! Even now that she is an older teen, her hyperactivity is still apparent. Beckie has learned strategies to help her focus over the years, and she knows ways to help burn up her excess energy. She teaches martial arts for several hours each week. She rides her bike or walks to neighborhood destinations. When she was younger, Beckie used to race cars from our house to the end of the block, running barefoot down the sidewalk just for the pure joy of it. At home these days she listens to music on her iPod and paces or runs through the house. Our first floor is structured in such a way that Beckie can basically run laps around it. Since we have hardwood floors, she can also get a running start and go for a nice slide across the floor. It’s kind of hard on her socks, but that energy has to be expended somehow and the sliding across the floor is relatively tame. We laugh together about the time I asked her if her hair dryer had stopped working, because she was running around the house with her hair only halfway dried. Beckie explained to me that her long hair takes several minutes to dry and she had to take a break from the monotony of drying her hair so she could move around a bit. Her attention span is short, but intense. She studies very hard, but not for hours on end. After concentrating for a period of in-depth studying, Beckie tells me her brain needs to take a break and do something different for awhile. I’m actually glad that she recognizes what she needs and finds strategies that work for her. Is she distractible with a short attention span? Yes, but she can focus and sustain her attention when needed. Is she hyperactive? Absolutely, but her extra energy is often a plus. There are times when Beckie acts impulsively. For example, she walks into a room, sees me there, and grabs me for a hug. Sometimes she will spontaneously start giving me a back rub as she is going by, and it is the best 10-second back rub I’ve ever had! True, it only lasts a few seconds before she is on her way, but I do enjoy those brief moments. Beckie faces challenges from being so energetic, impulsive, and distractible. But it’s not all bad. There’s something wonderful about Beckie’s ability to spontaneously show affection and respond with enthusiasm to so many different things. She is growing as the individual she is meant to be, without the burden of trying to completely change her natural inclinations.

10 Ideas for Teaching with Gift Wrap

Need some fresh ideas to use with your students? Don’t throw those wrapping paper scraps away, and hold on to that used gift wrap for a little while longer. Here are some ideas for using wrapping paper as a teaching tool, and it won’t hurt your budget a bit.
1. Use leftover pieces of gift wrap to practice scissor skills. Include some narrow strips of paper so that beginners can feel the success of cutting through the strip. Snip, snip!
2. Cut out images from the wrapping paper to play a matching game. Want something that will last? Glue one set of pictures on the inside of a file folder, and glue the matching pictures onto index cards or card stock paper. A little packing tape will work about as well as lamination to keep the pictures preserved for multiple uses.
3. Work on handwriting skills by having your child circle images on the gift wrap. If that’s a bit too challenging for your student, help them just draw lines connecting the pictures on the wrapping paper. Washable markers may show up better than pencil, especially if the paper has an intricate design.
4. Use both hands together as you tear wrapping paper into pieces. Glue the pieces onto the back (blank) side of another piece of gift wrap. For a greater challenge, try shaping the pieces into seasonal shapes such as a snowman or Christmas tree.
5. Develop hand strength by balling up the paper and squeezing it.
6. Practice following directions and visual discrimination by pointing to named pictures on the wrapping paper.
7. Work on listening skills by covering your eyes and trying to identify the location of a crinkling paper.
8. Teach about recycling by crumpling up old wrapping paper to use for packing material when preparing packages to be mailed. For added fun try throwing the wadded up paper into the box from various locations near the “target”.
9. Work on expressive language skills by naming or describing pictures on the paper.
10. Provide sensory input by putting scotch tape on paper. Try to offer a variety of thin, heavy, slippery and shiny paper to experience the different qualities of each.
Don’t you just love inexpensive materials that you can make yourself? I sure do, and I feel so frugal and creative when the activities are also fun for my kids.

Homeschool Flashback #1

This was an assignment Josh did for a homeschool writing class. In addition to the ADHD, auditory processing, and sensory processing issues, Josh struggled with social nuances. Some of Josh’s struggles he understood and could identify. Other symptoms left all of us baffled, even Josh. I’m glad that even at this young age Josh knew he was smart and strong, so some of my truth messages were getting through to him in the midst of his challenges. It’s interesting to me that “I know karate” made the positives and the negatives list. Knowing karate was good for Josh, in that it provided an outlet for his excess energy and helped him develop coordination and self defense skills. It also allowed him to be part of a group sport, but one that was individualized so he could progress at his own pace. Knowing karate was a negative for Josh, because as soon as other kids found out he was training in martial arts they asked if he was a black belt and then wanted to take him on. Josh was never aggressive, so demonstrating his karate skills outside of class was not appealing to him. One of the first things most boys do in social settings is talk about their favorite sports teams and the sports they participate in. Josh was more interested in drawing and creating things than in sports, so he didn’t have much to talk about other than that he knew karate. This led to the inevitable challenges to prove his skills, which Josh did only when he absolutely had to for self defense. Even then, he ended the confrontation as soon as he could. This homeschool flashback provides a snapshot of a young boy’s emerging self perception. Teaching him at home gave me the opportunity to help him develop a balanced view of himself, which is revealed by this writing assignment as he recognizes some of his strengths despite huge challenges. By the time Josh reached adulthood, he had a mental list of positive and negative things about himself that was accurate and realistic.

Nature Books and The Leaf Blower Noise

At this time of year in Ohio we are seeing the leaves change color and fall to the ground. Our outdoor walks provide us with crunchy leaf textures to trample and there is a different “fall” smell in the air around us. A leisurely stroll down the block will show us fallen acorns, black walnuts, and other tree products eagerly gathered by squirrels as they dart to and fro on the ground and along tree branches. We have a squirrel living in the ornamental pear tree in our front yard, and I like to pick up loose acorns and other such treats when I take the dog for a walk and then place the nuts in the nooks and along branches for “our” squirrel to enjoy. When my children were younger we took lots of nature walks, and I gave each of them a bag for collecting pretty leaves from different trees. We used tree identification books to figure out the names of the trees we saw, and we preserved a leaf from each different tree in a nature notebook. After pressing the leaves in a book, we glued them to a page where we listed all the information about what kind of tree it came from, where we found it, and the date we collected it. It was fun to read the book throughout the year and review if the leaf was simple or compound, when we had collected it, and more. Over the years, our collection increased and it was a challenge to see if we could find a new specimen that wasn’t yet represented in our nature book.
Those times spent in nature are some of my favorite homeschooling memories for this time of year. My son, Josh, gave me another fall memory that is equally imprinted in my mind. With his AD/HD, auditory processing, and sensory issues, Josh often said or did unexpected things. His impulsivity gave him a tendency to do whatever came into his head, with the result that I often found myself trying to figure out what was going on with Josh based on what I was seeing and hearing. Our special needs children do what comes naturally to them, and often don’t realize that not everyone experiences things the way they do. In this instance, Josh starting making weird vocal sounds as he played. I went into my analysis mode as I observed him. Is he stimming? Has he developed a vocal tic? Is he trying to calm and organize? Alert himself? Keep others at bay? Provide sound effects for what he is playing with? Can he stop making the sound if I ask him to? The speech therapist in me tuned in to see if the sounds Josh was making could be considered vocal abuse and could physically harm his voice. As I observed Josh, he seemed content. He could stop on request, but returned to making the sounds a minute later. It was not vocally abusive and his pitch and volume were within acceptable ranges for his “normal” voice. In the back of my mind, I recognized something vaguely familiar about the sounds Josh was producing. Then it hit me and seemed so obvious that I almost laughed at not recognizing it sooner. Josh was reproducing the noise of a leaf blower! Once I realized it, I became aware that somewhere in the neighborhood a leaf blower was in use. It was faint and distant and I had not even registered it. But Josh had an uncanny ability to imitate noises and he heard things that most people don’t notice. He did a pretty accurate leaf blower noise. He also made airplane and vacuum cleaner noises, but I recognized them right off the bat. The leaf blower noise took me awhile, but whenever I hear one in use I still smile and think of little Josh’s noise imitation talent.

Picky Eaters and Trusting Tomatoes

It seems that most kids have their favorite foods, and other foods they think are yucky. These food preferences do not present a problem for most children, because they eat a variety of foods and can get their nutritional needs met through different foods they willingly eat. For parents of picky eaters, however, you know the challenges, frustrations, and anxiety that can occur when a child has a limited number of foods they will accept. In addition to restricting the number of food items, some children refuse to eat unless the food is presented on the same plate each time and the drink must always be in the same cup. There are children who can tell the difference between brands of food, so even if you find a food the child will eat they may refuse it if you offer a different brand. For example, a child who eats chicken nuggets might refuse to eat them unless they come from McDonalds. For some picky eaters, the shape of the food is also important. They may eat round waffles, but not even taste waffles that are square. For some picky eaters, the color of the food matters to them. My son, Josh, has come a long way with his sensory processing and has expanded his diet to include most foods. Even as a young adult, though, Josh still has moments of uncertainty when he is presented with an unfamiliar food item. Just last week we were able to harvest some of our heirloom tomatoes. These tomatoes have a great flavor, but can be unusual in their colors and shapes. Josh loves red tomatoes and will eat them the way others eat apples. When Josh saw the yellow tomato I was offering him he was taken aback. I believe his exact words to me were, “Yellow tomatoes? Why are they yellow? I don’t trust yellow.” Trust can be a huge factor for picky eaters. Sometimes parents try to force the child to taste new foods and their pleas and threats backfire and result in even greater resistance. This is especially true if a child thinks he might be forced to do something that is uncomfortable or aversive despite his protests. Understandably, parents are concerned about their child’s diet and the need for balanced nutrition. When a child only eats a few foods day after day, it’s anxiety provoking. Worse yet, some children suddenly decide that a food they have eaten regularly is now on their long list of unacceptable foods that they will no longer eat. Mealtimes can become unpleasant and a battle ground for concerned parents who are trying to get their picky eaters to just take a bite of food. If mealtimes are that difficult at home, how can you ever go out to eat or eat at a friend’s house? It’s frustrating and worrisome. Books such as Just Take a Bite offer suggestions and strategies to expand a child’s diet. One suggestion offered is to have your child help you prepare the food. That way he can see exactly what you put in the recipe. Another tip is to work gradually toward accepting new foods. Some children react so strongly that they become distressed just seeing a food item on the table that is not on their list of acceptable foods. A goal would be for the child to tolerate the food near them, then on their plate. Even at that point, professionals don’t recommend that you insist that the child eat the food. It is a gradual process, with multiple presentations of the refused food over time. It’s progress if a child will allow a new food to touch his lips. I used to tell my children that they didn’t have to like a food, but I did want them to at least taste it. This may be a helpful strategy for a child with few or mild food aversions, but for the more extreme picky eater it won’t be adequate. This degree of resistance goes beyond what typical children do. Considering that mealtimes happen every day, multiple times, it’s no wonder that parents feel desperate to help their picky eaters.

Child Discipline

Let me start with a disclaimer. I am not a child expert, nor a parenting expert. The things that I share on this blog are intended to be helpful and the reader has the responsibility to apply what they find useful and ignore the rest. With that said, I want to share with you an experience I had years ago with my AD/HD daughter. Beckie was a very active girl with a lot of energy. With her sensory processing issues, she exhibited low body awareness and regulation was a challenge for her. My exuberant, active, and sensory seeking child had trouble sitting through a meal. She wasn’t a picky eater, so food aversions were not to blame. She just had a need to move around. A lot. And it didn’t matter if we were doing school during the homeschooling day, or if we were having a meal together. That girl had to move. Having been down this path previously with her older brother, I had learned to be more flexible and accommodating. Even so, it’s distracting to have a distractible child and it can be disruptive even when that is not the child’s intent. I honestly don’t believe that Beckie was trying to cause problems, and in fact I don’t think she was even aware of her movements sometimes. I would remind her to sit down, and she would look down at her legs with a surprised expression on her face as if to say, “What? I’m up again? How did that happen?” One night during dinner, my sweet Beckie was having more difficulty than usual sitting still. Her father, Scott, decided it was high time Beckie learn to remain seated during the meal. Beckie would promptly sit down as soon as she was reminded, but Scott was getting tired of having to repeatedly request that she return to her chair. After several reminders, Scott decided to kick it up a notch and be firmer with Beckie. The next time Beckie popped up out of her chair, Scott leaned over the table and pointed an index finger at Beckie. Then he used her full name, which every child knows is a serious warning sign. “Rebecca Michelle, you need to SIT DOWN!” At this point, Beckie became very still as she stared at the finger in front of her face. It was so close to her that she went cross eyed. She then looked up at her Father, eyes still crossed, and with amazement in her voice pronounced “Two Daddies!” Totally missing the point, Beckie happily discovered that crossing her eyes made things look interesting and incredibly she was now seeing double with two Daddies in place of one. I was trying so hard not to laugh that I had to leave the room. My husband wasn’t far behind me. We looked at each other and Scott said, “Well THAT didn’t work!” We continued to work with Beckie on sitting still when it was called for, with the understanding that she needed to mature and eventually would. I was crazy about Beckie, even when her zest for life couldn’t be contained. She grew, and was able to sit still when she needed to. Maturation takes time, and refuses to be rushed. We do what we can to promote and facilitate it, and then we get to practice patience. It’s so important to keep your sense of humor when you are a teacher and/or parent. Your kids will give you a plethora of opportunities to see the humor even in challenging circumstances.